Context
Context
In the current post-pandemic, demographic, and socio-sanitary context, the lack of studies on local places of long-term care and the realities of residents, family caregivers and healthcare professionals represents a significant obstacle to the management of Quebec's long-term care facilities (MDAs and CHSLDs), which are often socially and culturally marginalized.
It is, therefore, crucial to examine the lived experiences of residents, their relatives, and professional caregivers, but also the practices and dynamics shaped by the complex and plural dimensions of long-term and end-of-life care in CHSLD and MDA environments. This includes analyzing how these are influenced by everyday organizational, relational and ethical challenges and transformations.
Methods
In the framework of this project, I am conducting a 15-month research fieldwork in two care units, using an ethnographic approach combining observations and interviews.
Drawing on the issues considered most important by collaborators in the field, I am examining the ways in which eldercare is provided and negotiated, how various actors express their perceptions and construct meaning, and how the moralities and ethics of caregiving are enacted between living and dying. My anthropological approach is oriented towards decolonizing research practices with community stakeholders in a non-extractive and collaborative way.
Aim
The objective is to make visible the sociocultural and ethical representations underlying care and end-of-life experiences while amplifying the voices of these essential actors who are too often marginalized or silenced.
This research aims to contribute to a deeper understanding of care for older adults in Quebec—its organizational, relational and ethical dimensions—to better envision its actualization. Ultimately, the project's social relevance lies in creating a space for reflection and dialogue, putting forward the humanity and future of long-term and palliative care, together with the support of older adults, care professionals and family caregivers.
Fields of study
Medical Anthropology
Sociocultural Anthropology
Ethics
Health Sciences
Critical gerontology
Methods
Qualitative and ethnographic methods
Semi-structured interviews
Participant observation
Collaborative approaches
Action research and applied research
Research interests
Long-term care
Palliative and end-of-life care
Aging and older adults
Clinical and organizational ethics
Diversity and cultural pluralism
Medical assistance in dying
Conflicts and decision-making processes
Suffering and moralities
Lived experiences and representations
Care relationships and practices
Inequalities and social determinants of health
Health and social care systems and organization
Pandemics and health crises
Health education and innovation
Fieldwork log
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